Brain Injury Web Links
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Below is a listing of web sites related to brain injury. A brief description follows each title. They are listed in alphabetical order.
General Information on Brain Injury
www.biausa.org The National Brain Injury Association, Inc. web site. Contains the National Directory of Rehabilitation Services, state brain injury offices, information on prevention and cost, upcoming conferences, articles, ask the doctor, and pediatric information.
www.braincenter.org The Brain Injury Association of Kentucky - reviews brain injury and resources.
www.brainindex.com Information on brain injury, from concussion to coma. Links to advocacy, coma, Brain Injury Association, and others. Online support groups and online chatrooms.
www.brainstormtbi.org Provides state and legal resources in Wisconsin.
www.caregiver.org Family Caregiver Alliance. Fact sheets, online support, legislative alerts, newsletter.
www.cdc.gov/ncipc/tbi Centers for Disease Control and Prevention. Facts about concussion and brain injury, and where to get help. Free booklet with statistics, prevention, and mild brain injury.
www.claudiaosborn.com Book "Over My Head" by Claudia Osborn. Experiences of an individual with a brain injury.
www.comarecovery.org The Coma Recovery Association (CRA) is a non-profit organization, located in New York. Contains documents, online library of various topics.
www.dpi.state.wi.us/dpi/dlsea/een/tbi.html Wisconsin Department of Public Instruction, Traumatic
Brain Injury information. Contains TBI definition and eligibility, TBI Resource kit, CESA contacts.
www.fasst.org Friends and Survivors Standing Together. Clear
steps and information on how to set up a support group
in your community.
www.headinjury.com Informational site of definitions, newsletter, library, professional resources.
www.health.org National Clearinghouse for Alcohol and Drug info. Click on Alcohol and Drug facts, then Disabilities, then "TBI and Drugs".
www.health-helper.com Discusses book of "Coping with Mild Brain Injury" by Diane Roberts Stoler and Barbara Albers Hill. Has links and resources on brain injury, contusion, concussion, stroke, tumor, TBI and MS.
www.lapublishing.com Lash and Associates Publishing/Training. On-line
catalog of tip cards, manuals and books specially
written for parents, educators, and clinicians.
www.naric.com National Rehabilitation for Information Center. A collection of federally funded research projects, books, articles. Information and referral, database searches. Service to anyone interested in disability and rehabilitation.
www.neurolaw.com Neuro Trauma Law. Information resource for understanding the legal system's involvement in brain and spinal cord injury. Role of neurolawyer, understanding brain and spinal cord injury, legal resources, support groups.
www.neuroskills.com Traumatic Brain Injury Resource Guide. 30 sections, i.e. brain map, mild head injury, bookstore, support groups, pharmacology, research grants, conference calendar.
www.nemc.org/rehab/homepg.htm New England Medical Center - Dept of Rehab Medicine. Publications on brain injury, children and prevention. Has Pediatric Trauma Registry.
www.neure.com Neurotrauma Registry is a tool to help individuals who have sustained a traumatic brain injury, spinal cord injury, or other complex neurotrauma. Using the Neurotrauma Registry, individuals have the ability to locate professional care-givers and associations, such as the Department of Rehabilitative Services, in their geographic areas.
www.nichcy.org National Information Center for Children and Youth with Disabilities (NICHY). A comprehensive information and resource site with publications related to issues of children, disabilities, and education.
www.rehabnet.com Northeast Rehabilitation Health Network. Information on various topics of disability and rehabilitation.
www.secondchancetolive.wordpress.com Site presents topics in such a way to encourage, motivate and empower the reader to live life on life's terms. Craig J. Philips is a brain injury survivor and a master's level rehabilitation counselor.
www.subtlebraininjury.com Sponsored by Brain Injury Law Group, headquartered in
Wisconsin. Reviews mild brain injury.
www.tbilaw.com Sponsored by Brain Injury Law Group, headquartered in
Wisconsin. Information about brain injury, coma, mild brain injury, personal injury, social security, ADA, worker's compensation. Several links to other sites on brain injury.
www.tbi.org The Perspectives Network. Frequently asked questions about brain injury in multiple languages, chat site, message board, articles from The Perspectives Network Magazine, reference materials, resources, and survivor tools. Survivors can scan their artwork and poetry.
www.tbichat.org Seven different chatrooms, message boards for discussions and questions, member stories, poems and writings, and homepages of individuals with brain injury and caregivers. Contains other links about brain injury.
www.tbilife.com A
website dedicated to survivors to help them deal with
the many frustrations, Q&A from survivors from
around the world, poetry
www.tbinet.org Brain Injury Information Network. Resources and links to TBI support groups, medical and drug references, seizure info, articles, education and IEP, alternative therapy, legal info.
www.tbigrants.com State demonstration grant program. Explanation of statewide systems that ensure access to comprehensive and coordinated TBI services. Lists federal agencies' web & addresses
www.tbiquide.com Book titled "Traumatic Brain Injury - Survival Guide", 1998 by Dr. Glenn Johnson, Clinical Neuropsychologist. Reviews common indicators of brain injury, anatomy and function of brain, common problems and coping (memory, headaches, getting organized, anger, and depression).
www.vh.org Virtual Hospital from University of Iowa Health
Care. Go to "For Patients," then
"Department," then to "Neurology,"
then to "Brain Injury." Or you can start
at www.vh.org/Patients/IHB/Neuro/,
then click onto Brain Injury. This link provides a
booklet online named "Brain Injury: A Guide
for Family and Friends." Also available in
Spanish.
www.waiting.com Site dedicated to people who have a loved one in a coma. Information and emotional support. Features coma stories, advice, anatomy, ICU guide for families, frequently asked questions, legal and financial issues, advocacy in the hospital and nursing home.
Organizations Related to Brain Injury
www.abta.org American Brain Tumor Association. Research, information and resources.
www.acenet.edu American Council on Education. Go to ACE programs,
then to HEATH Resource Center. Information
concerning post-secondary education and individuals with
disability.
www.dana.org Information on the programs, activities and publications of the Charles A. Dana Foundation and the Dana Alliance. Grant programs in health and education.
www.efa.org Epilepsy Foundation. Contains research, news, educational material, and publications.
www.familyvillage.wisc.edu Waisman Center - Family Village Project. Resource concerning disability and children. Can connect with other parents with children with similar challenges or needs.
www.fetaweb.com Special Education Survival Guide; Has articles, checklists, sample letters, charts & resources; Has a "Yellow Pages" for kids with disabilities; is the companion website to www.wrightslaw.com
www.halftheplanet.orgNamed on the estimate that half the people will have a
disability at some time during their lifetime, this site
promotes information, advocacy, and self-awareness based
on experiences of persons with many types of
disabilities.
www.heath-resource-center.org HEATH Resource Center. Information concerning post-secondary education and individuals with disability.
www.medicarerights.org Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare.
www.mcw.edu The Medical College of Wisconsin. Education, research, patient and community care.
www.ncpad.org The National Center on Physical Activity and Disability (NCPAD) encourages persons with disabilities to participate in regular physical activity as a means of promoting healthy lifestyles and preventing development of secondary conditions. Variety of resources for persons with disabilities. Also has research citation searchable database.
www.npnd.org National Parent Network on Disabilities. All types
of legal, advocacy, and educational information to
empower parents as the service coordinators of a child
with special needs.
www.pacer.org Parent Advocacy Coalition for Education Rights.
Provides national list of Parent Training Information
Centers. Information on all aspects of special
education and advocacy written specifically for parents.
www.parentpals.com This user-friendly site has an interesting feature that
helps link parents with professionals and shares
parents' tips with other parents without the involvement
of a listserve. Provides information all parents
need about special education regardless of the child's
diagnosis and disability.
www.pedianet.com Comprehensive pediatric health and information resource
for parents, children, and health professionals.
Can link to Exceptional Parent Magazine.
www.stroke.org National Stroke Association
www.wiccbd.orgWisconsin Council for Children with
Behavior Disorders, division of national Council for
Children with Behavior Disorders (www.ccbd.net) and
parents organization Council for Exceptional Children (CEC).
www.wistech.org Assistive technology information network. Information on products, services, selecting, funding, installing, and using assistive technology.
www.wrightslaw.com Special Education Law & Advocacy
Wisconsin Government Offices
www.dhfs.state.wi.us WI Department of Health and Family Services
www.dpi.state.wi.us WI Department of Public Instruction. Go to
Divisions and Teams, then to Special Education Team,
then to Special Education Programs/Resources.
www.dpi.state.wi.us/sped/tbi.html DPI, TBI page. Contains TBI definition and eligibility, TBI Resource kit, CESA contacts.
www.dwd.state.wi.us/dvr Division of Workforce Development - Department of Vocational Rehabilitation.
www.wcdd.org Wisconsin Council on Developmental Disabilities (WCDD).
The WCDD plans and advocates for adequate and appropriate supports for people with developmental
disabilities in Wisconsin. Created DAWN, (Disability Advocacy: Wisconsin Network), an e-mail
network of people who act on disability issues.
DAWN web: www.wcdd.org/dawnsignup.htm
www.wha.org WI Health and Hospital Association
www.wisconsin.gov/state/home A guide to Wisconsin - government, education, Human Services, etc. Has contact information to the state legislatures and the Governor.
National Agencies and Offices
www.disAbility.gov federal government site, links to disability resources.
www.hhs.gov Department of Health and Human Services
www.hrsa.gov Health Resources and Services Administration
www.mchb.hrsa.gov Maternal and Child Health Bureau
www.ncd.gov National Council on Disability.
www.nfcacares.org National Family Caregivers Association
www.nyssf.org National Youth Sports Safety Foundation. NYSSF increases public awareness by establishing and promoting high prevention standards in sports.
www.ssa.gov Social Security Administration
www.usdoj.gov/crt/ada/adahom1.htm U.S. Department of Justice, Americans with Disabilities Act (ADA)
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Disclaimer:
All external hyperlinks are provided for your information and for the benefit of individuals with brain injury, families, friends, and professionals who work with brain injury. BIAW does not testify to, sponsor, or endorse the accuracy of the information provided on the web sites
listed. ...supported in part by
(2H21MC00021-03) from the Department of Health and Human Services (DHHS)
Health Resources and Services Administration, Maternal and Child
Health Bureau. The contents are the
sole responsibility of the authors and do not necessarily represent
the official views of DHHS.
